Working to Improve the Lives of ATR-X Families
Alpha Thalassemia X-Linked Disability Syndrome also known as ATR-X has affected around 250 families worldwide!
Rare Diseases Worldwide
people affected by a rare disease
Child Patients with a rare disease diagnosis
Rare diseases are defined as a condition affecting fewer than 200,000 people.
Together We Are Strong
In the medical world, WE are rare! ATR-X is predominantly unheard of, but together we are united and strong. We are FAMILY and we are walking this journey together.