Working to Improve the Lives of ATR-X Families
Together
We Are
Strong
Alpha Thalassemia X-Linked Disability Syndrome also known as ATR-X has affected around 250 families worldwide!
Rare Diseases Worldwide
0
people affected by a rare disease
1-in-
0
Child Patients with a rare disease diagnosis
1-in-
0
Rare diseases are defined as a condition affecting fewer than 200,000 people.
Together We Are Strong
In the medical world, WE are rare! ATR-X is predominantly unheard of, but together we are united and strong. We are FAMILY and we are walking this journey together.
Your financial support can help us continue to meet our mission.
How You Can Help Support Our Work:
MAIL A DONATION
880 Farmview Ct. Valparaiso, IN 46383, USA
DIGITAL DONATION
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Send donations to [email protected]